I've had so much negativity in my life lately. I recently had to deactivate my facebook because I just couldn't handle how upset it made me. With my Crohn's Disease I do not need that negativity and stress in my life. I plan to eliminate anything that causes me distress.
Since my last post, I have been put on a new medication to help treat my crohn's. I had my second loading dose of Enytvio. It is an infusion that I will get every 8 weeks for the rest of my life (or until it stops working which I hope does not happen). It's a 30 minute appointment which is a big change from the 3 hour appointment with the Remicade infusion I was on. I found out in November that I had developed antibodies to Remicade, so therefore was switched to Entyvio. I am also on a 40mg taper of prednisone. I cannot wait until I no longer depend on prednisone because it is such an icky drug. Day sweats, night sweats, bloated "moon face", constant hunger. YUCK! I've been feeling pretty good so lets hope this continues.
I have also had some stress with my job. I work for a contractor, and recently the contract was up and we didn't know whether we would get to keep the contract or if a new company would come in, well a new company came in and took over and it was a complete mess. I had to go to a job fair to apply for the job I already had. Needless to say, I got to keep my position but lost ALL of my benefits I had worked a long hard almost 3 years for. FMLA, health insurance, life insurance etc. So here I am wishing and hoping for the best and that I don't flare and get fired from my job. Luckily my husband was able to get health insurance through his work to help the family out. We are still waiting for coverage and I'm hoping it hurries. I need my infusions pre-approved before my June infusion.
I don't think people see or understand all of the stress I am under because they continue to put me in stressful situations. I try to handle and control everything and try not to show weakness.
The kids are doing great, Austin is doing great. School is almost out for Gavin for the year. I can't believe he will be in 4th grade next year. I am hoping to get Kynlee in preschool here soon.
Not much else to report.
-Ali
